Since I've been dx. with Sjogren's, this is a list of symptons I have. Starting with the feet, and going up.
- Vasculitis - If I do too much activity, or even travel I get flat hives. They are a redish purple, very painful...with a burning feeling. When I take COLD showers, I will cry because my legs are burning from this Vasculitis. I have no dx. of this yet, nor am I sure what kind it is because that it is Small Vessel Vasculitis. This takes usually a day to disappear, but on rare days...it will take days to disappear. During that time if I move it gets worse. Even if I'm getting up to to the bathroom. When it's bad enough I cannot move, or it'll hurt way too much to even move. At this time there would be millions of these "hives" on my legs. My ankles swell up badly also. Before I get the hives I usually get leg cramps and a sort of burning.
- Knees - After too much standing or walking, my knees start to hurt alot. It usually takes about 20 minutes for them to start hurting. My knees are also very dry. Sometimes they are a little red and swell a little.
- Hips, tail bone & Back - I wake up every morning and my hips, tell bone and back hurts alot. Usually I can't even move when I wake up, but I have to force myself to get up and at least turn off the alarm and reset it to 9am. Every day from morning till bed time they hurt, and they get worse as the day progresses. Alot they hurt so much they actually make me cry. The only thing I found that helps with them is taking a hot shower and just laying on my arms and knees in the shower.
- Tummy - Alot of the time my tummy hurts. Doesn't matter what I do. Sometimes I even feel nausous. It gets alot worse during flare ups and also monthly. It might be possible that when monthly starts I have a flare up. Would make sense, since when Sjogren's started to appear fast, it was after I started my first period.
- Arms & Hands - I cannot left heavy things. Like a case of 24 cans of pop, or carry two gallons of milk. I have a hard time keeping ahold of anything. My fingers hurt alot, they pop..crackle, and snap. Some of my fingers have become double jointed and sometimes dislocate themselves. the bones on my hands hurt alot also.
- Chest Pain - I often get a little chest pain, some breathing problems. It really hurts when I start to cry, or try to stop from crying. There have been times when I tried to stop from crying that I couldn't breathe at all. So it was hard to stop.
- Neck - My neck often hurts, probably partly to do with my back and my glands near my jaw hurt alot too.
- Dry mouth- I often have very dry mouth. I wake up and it's very dry...often I have problems getting my mouth to be wet enough to swollow anything. Since I have dry mouth my teeth are extremly bad. To the point where my teeth alone could kill me if I leave them umtreated. I have infections alot because of them, and lately(2008) I have been throwing up when I have a bad enough infection. I have alot of trouble eating due to my teeth falling apart, so lately I have been drinking Ensure.
- Dry Eyes - Dry eyes really isn't a problem until later in the day, or right in the morning when I turn on the lights or go outside. They will burn alot, and become blurry sometimes and I have a light sentivity.
- Memory - I am very forgetful. I can't remember something someone said a second after they said it, and If I am trying to ask someone a question...they better stop talking so I can ask before I forget. I have a bad case of Brainfog aswell.
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